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What if going outdoors was ‘always’ dangerous?

October 7, 2019
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AND SUNLIGHT WAS THE HURTING AGENT? That’s the reality that little Tiri faces every day. Like every New Zealand child, she’d love to play outdoors, but Tiri must be ultra-careful due to a rare blood disorder that makes her allergic to light. What is warm, comforting sunshine to us is a torturous burning for Tiri.

But she’s five and still wants to play outside. How can this be done?

For some time, Tiri has wanted her own playhouse, a space where she and her friends can have outside fun in safety. When RPS heard about Tiri’s situation, we knew we could help: we could build that playhouse for her.

As you can imagine, an ordinary playhouse won’t do; something special has to be designed. The first step or RPS was getting: what features would “Tiri’s Palace” need in order to keep her safe? Here’s the list of design ‘must haves’:

  • The ‘palace’ needed to be two-storied, bigger than a typical playhouse to enable…
  • Windows needed to be tinted with a special film to filter the harmful aspects of sunlight
  • A code-compliant staircase. Tiri’s lack of mobility meant that a typical ladder to the top floor wasn’t a safe option. A proper staircase was needed.
  • A block-out shade covering the route from the house to the play house.
  • Specialty light bulbs to provide interior light (standard light bulbs burn Tiri’s skin)
  • Tiri’s Wish List: Tiri wanted several fun-features in her palace. A fireman’s pole, a slide, swings (Tiri’s not into swings herself, but her friends are!).

Time to get designing!

IF YOU’D LIKE TO HELP TIRI YOURSELF, visit her FACEBOOK page:
https://www.facebook.com/Raising-Tiri-103079594369070/